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Month: May 2016


Thursdays have been my Monday lately. Thursdays used to be my Saturday, but for the past month-plus, they are definitely Mondays.

Thursdays used to be my favorite day because of doughnuts, dress downs, and patty melts. I am a simple woman with simple pleasures. And then Thursdays consistently blew up.

It was Thursday when I found out my dad had lung cancer.

It was Thursday when I blew up my family.

It was Thursday when I realized that a week after surgery to treat the lung cancer, Daddy was still in the ICU and I still hadn’t heard him speak or laugh.

It was Thursday when the doctors did an MRI on his brain and found “something.”

I know these Thursdays because of how you remember exactly where you are when catastrophe strikes. My mother remembers (well, she used to remember) where she was when Kennedy was shot. I remember where I was when Challenger blew up, and when the twin towers fell down. I remember who was around me, how I felt, how other people reacted.

Every Thursday night I’m with my writing group. This small band of diverse people gather each week to write, to bounce ideas off each other, to celebrate victories (submissions, acceptances, the finishing of first drafts, new story ideas)…to be writerly. I was thrilled when one of them invited me to join, as this is the sort of group I’ve been longing for my whole writing life. What I didn’t realize was that this little band of writers are now much more than just the people who give me good synonyms and encourage me to keep writing.

They give me real support, the kind that goes well beyond writing.

I know this because when my life blows up each Thursday night, I am with them. And they immediately give me hugs. There is no judgment, there are no questions. Just loving concern. I sit at my computer and then I start crying and they kindly ignore me until I look up, shaking, and make eye contact and they realize I’m about ready to bolt or lose my shit or, quite possibly, both at the same time.

The hugs are the good kind. The kind that are tight and long and unrelenting. The kind that say, “I have you. You are safe, at least for this moment. I get it.”

The first time this happened I wasn’t prepared. I wasn’t prepared for these people to give so much of themselves, so much of their own humanity. Our conversations around the writing table are typically pretty light-hearted. I inevitably end up laughing and feeling so thankful that I was invited into this little community where the topics are wide-ranging and I learn something new each week. I considered this group my friends, definitely, but they were segmented into my “writing friends” group. Not my “cry my heart out friends” group. (I have those, too, but I don’t get to see them the same night each week, although I should because that would be awesome.)

Then one Thursday night all my fears and emotions about my mother’s Alzheimer’s came tumbling out, manifesting themselves awkwardly in public through my tear ducts. I stood up to bolt, because no one wants to bawl their eyes out in the local coffee house. I was cramming my belongings back into my backpack when one of my writer friends stood up, too, and wrapped me in a giant bear hug. All he said was, “I know.” And I remembered that his mother has Alzheimer’s and that he cared for her until he couldn’t anymore and that he visits her all the time in the facility that now cares for her better than he can. And I knew that he knows exactly how I feel and that I am not alone, despite feeling that way most of the time. Why do I forget I’m not the only person to go through this? Why do I think that I should hide my feelings about this because no one would understand? That’s the sort of garbage thinking that derails me completely. Left to its own devices, my brain will spin and spin, gaining in speed and destruction. It takes someone who has been there, reaching out to stop the escalation and still the spin, to get me back on track. It takes someone who knows the wide range of ever-changing emotions that comes with having a loved one with Alzheimer’s. It takes someone who can say only, “I know” and have it mean worlds. Only then can I slow down, stop, and remember that I am not alone, that there is a path through. It may not be the same path, but it’s a journey that none of us has to take alone.

I’ve written a lot over the past couple of weeks, and it has helped me feel better even though I know it’ll never be published anywhere. It’s been too dark here, though, even though the dark is sometimes comforting. I need my presence here, even while I want to hide under the covers.

Daddy’s surgery was almost two weeks ago. The surgery went fine. All the stuff after – the stuff that’s supposed to be the recovery – hasn’t gone well. At all. It took over a week and half to hear him talk. I miss his laugh. I miss his ever-present concern over our well being. Instead, I’ve seen him in conditions that I will never forget, and that will always make me cry.

They don’t know what’s going on. At first, he was aggressive when they feathered off his sedation. They don’t know why he woke up once and, even with restraints, managed to yank out his IV, his NG tube, and his chest tube. The nurses finally got him subdued and tightened his restraints and, I imagine, gave him something that knocked him on his ass for his own good.

It’s not supposed to be going like this. He’s actually supposed to be home now, grouchy but whole. He’s supposed to be grimacing as he sits up and doing his breathing exercises and setting up follow-up appointments. He’s not supposed to be still incoherent at best, and unconscious at worst.

Mom knows what’s going on, generally. She doesn’t understand why he’s not home yet, which is perfectly normal because we don’t understand, either. She forgets that she’s already been to see him today. She cries because she misses him. We all cry because we miss him.

I think perhaps the hardest part is the unknown. We don’t know what’s wrong. So we don’t know how to fix it. We don’t know when it’ll be right again.

Sometimes I’m able to step outside my reality, and look at it objectively. That’s the woman whose dad is in critical condition. That’s the woman whose father has been in the surgical ICU for almost two weeks. How sad that must be for her. I wonder what’s going to happen? I wonder how she’s dealing with that? I think I’m able to do this mostly because some part of me just can’t believe that this is what is actually happening. At work, one day last week, colleagues started showing up in my office. “I’m so sorry about your dad and mom. I had no idea.” Over and over. I realized that someone must have sent out an email. It was touching and weird all at the same time, because I have been on those emails, have felt bad for the subject of those emails, have wondered how that person is coping with so much tragedy all at once. That’s when I could step outside my reality and look at myself clinically, as someone else. That poor woman whose world is crashing around her.

My sister and I take turns breaking down and building each other up. We text and email a lot during the day. She calls me with updates after she talks to the ICU nurses. She tells me over and over that I can call them myself and get updates, but I don’t know what to say to the nurses, or how to understand what they tell me. She has the medical background. She asks questions in that special code of medical language that I can’t decipher, the code that tells her volumes through data. She gets his temperature (the highs and lows). She checks on his oxygen, on his heart rate. She knows what all the different medications are that they’re trying, and what their dosages mean. She knows which is a sedative and which is for fever and which are his normal medications that he takes on a daily basis. She takes in all those terms, all those numbers and knows if he’s doing better today than he was yesterday. I say only, “What’s going on? Is he better? Have you fixed him? Why can’t you fix him?”

When the nurses answer my sister, they speak in that shared, common language. When the nurses speak with me, they speak in the dumbed-down language that they reserve for the Muggles of the medical world. “He’s doing a bit better today! Just wait, one of these days it’ll be like flipping a switch and he’ll be back to himself!” They are kind and professional and caring to both of us.

He has started coming back to us, slowly. He started speaking yesterday. When I visited him this afternoon, I couldn’t understand much of what he was saying. He wasn’t too responsive to me, and I realized that I wasn’t speaking loud enough. The nurse bustled around, belting out questions and getting crisp responses from him. I went to leave and spoke loudly, like she did. It felt like shouting to me. “Daddy! I’m leaving now but I will be back tomorrow. I love you!” He opened his eyes, puckered his lips, and gave me a kiss. He said, “I love you.” My heart soared and everything inside stilled and the universe tilted a little bit back towards center. And I realized that I will never again take it for granted when he says, “I love you.” I will remember when he asks me, for the fifth time, “Did you lock your doors? Did you close the garage?” he is really saying, “I want you to be safe because I love you.”

This Thursday was good. I am moved into a new office at work and today felt settled there. (Maintenance hung my pictures yesterday, which always makes it feel like home.) I had a wonderful end-of-the-year lunch with colleagues after an end-of-the-year plenary faculty meeting where five of my peers were recognized for being amazing people. There were doughnuts in the faculty lounge this morning. The rain stopped and the sun came out and Daddy said, “I love you.”

I’m sitting here with a group of writers, some of us writing and some of us talking about writing, and nothing is blowing up. When I arrived tonight, anxious because of how the past Thursdays have gone, two of my writer friends immediately looked me in the eye and asked how things are going. I relaxed, and said, “Much better, thanks.”

And then I sat down and started writing.

I’ll just put this out here…

My mother has stage six Alzheimer’s.

My daddy has a tumor in his lung.

And a girl with heavy, kohl eyeliner challenged my myopia tonight.

I keep trying to write here, and I keep getting nowhere. I’ve started and stopped, and started again. Over and over. Each post seems whiny and definitely not funny at all. I try to find humor every single day, and at the moment it eludes me. So I just don’t post anything. I go dark, and admittedly have found some solace there.

I’m not saying I don’t laugh at all. I do. People at work are funny and they say things in passing that make me laugh. Zoe regularly cracks me up, as does M. But I don’t have sustained, gut-busting, tear-inducing, therapeutic laughter. I haven’t had the kind of experiences lately that make me think, “Now that’s a funny blog post.” Instead, I’m feeling battered. I’m dodging curveballs and continually assessing and adjusting, and I’m so exhausted I can’t even imagine what might be coming next. I’m day-to-day right now. A friend told me that’s how I’ll get through this, and I know she’s right. I’m starting to truly understand that day-to-day is another way to say survival. I remind myself that this is where I am right now. I am going through this, but that’s the beauty of it…I are going through it. I am not standing still. I will come out the other side. Bruised but whole. Stronger in the broken parts. Hopefully.

I went to open mic tonight, having in mind one piece to read (which started as a short story but has largely just been an extended character study so far) and wound up changing at the last minute to something more light-hearted. The only thing I’ve written with any humor in it lately, largely inspired by half a bottle of wine. It was okay. It got a few laughs. People came up after and told me they liked it and I ran out of business cards, which is not as impressive as it sounds after I admit that I only carry three at a time. I was asked to join a critique group, which both thrills me and makes me wonder if I can handle adding anything else right now, even if it’s something I desperately want and need to continue to improve my craft. The critique group may have to wait. Maybe it won’t. Maybe it can’t. I’ll have to see when I get to that day. It’s on the fifteenth, I think. That’s a million miles away.

I woke up at 3 a.m. one morning last week and wondered how in the hell can I be a mother. I feel so lost, so unmoored…how can I be raising a child? If I don’t know what I’m doing, how can I guide her? It was unsettling, and kept me up. That one might fester for awhile.

I’ve been listening to Elizabeth Gilbert’s Magic Lessons podcast, on the recommendation of a dear friend who knows me to my soul and always seems to point me in exactly the right direction when I’m wandering lost. The podcast, perfect lengths for a commute to and from work, is like a little bit of oxygen in a starved environment. It helps me remember that I’m not alone, that other people are struggling to create (music, writing, paintings), too. Everyone has some sort of struggle. One woman Ms. Gilbert interviewed has found herself creatively stuck after losing her sister two years ago. I could hear her grief, which sounded as fresh as if she had lost her sister yesterday. And I am grateful, for at the very least, despite everything else I’ve got going on, I still have mine. (I tried like hell to lose her last week, but we persisted and she’s stuck with me and I know that even when we fight it’s because we love so very much.)

I cry a lot now. I’m all for a good cry every now and then. It releases everything, leaves the heart clear, fresh and shining like the world after a good storm. My crying, though, hasn’t been the good, clearing kind. It’s been the kind that comes unexpectedly when someone looks at me – really looks at me – and asks, “How are you doing?” Yesterday it was my monk who triggered my tears; he who contains whole worlds in his eyes. His students swear he can see into your very soul when he looks at you. I understand why they think that.

There is a group of women – mothers – where I work who have offered to help me, to help my family. They are offering to bring us meals. I received an email from one of them and burst into tears. Their kindness stunned me into speechlessness. I couldn’t even write back immediately. I waited until the next morning. I explained everything that is going on. She wrote back and said I know. She said I know exactly where you are. She said My dad had Alzheimer’s. I cried again and my heart broke for her and for me and I found comfort in this awful, shared experience.

I went to open mic tonight and when a girl with kohl eyeliner stood up and belted out two powerful poems, I was transported out of my world and into hers, just for the briefest of moments. It felt good to be challenged, to be reminded that there are so many other experiences happening every minute of every day. Some are just as painful as mine, if not more. Some are joyous and full of delight and wonder. The former gives me strength; the latter gives me hope.

When Nora Ephron’s mother was on her deathbed, she told her daughter, “Take notes.” She had also told her, over and over again, “Everything is copy.” I believe that, and because I believe that I write through it all, good and bad. So I’ve decided to just put this out there, and you all can see where I am right now. It’s not a happy-fun place. It’s nothing that will make you laugh. It’s simply where I am, who I am right now: raw and battered, red-eyed and exhausted, and definitely not funny. My mother has Alzheimer’s. My daddy has a tumor in his lung. As painful as this is, it’s my reality. Maybe you’ll find some strand of shared experience, something that makes you think, “Me, too” and realize you aren’t alone, either. Maybe you won’t, but you’ll get a glimpse into a life different than your own and learn something new. Maybe you’ll say, “Bah. I liked it better when she wrote funny.” Me, too, friend. Me, too.